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Page 1
Building access to care in adult sickle cell disease: defining models of care, essential components, and economic aspects.
Kanter J, Smith WR, Desai PC, Treadwell M, Andemariam B, Little J, Nugent D, Claster S, Manwani DG, Baker J, Strouse JJ, Osunkwo I, Stewart RW, King A, Shook LM, Roberts JD, Lanzkron S. Kanter J, et al. Among authors: king a. Blood Adv. 2020 Aug 25;4(16):3804-3813. doi: 10.1182/bloodadvances.2020001743. Blood Adv. 2020. PMID: 32785684 Free PMC article.
Design of the silent cerebral infarct transfusion (SIT) trial.
Casella JF, King AA, Barton B, White DA, Noetzel MJ, Ichord RN, Terrill C, Hirtz D, McKinstry RC, Strouse JJ, Howard TH, Coates TD, Minniti CP, Campbell AD, Vendt BA, Lehmann H, Debaun MR. Casella JF, et al. Among authors: king aa. Pediatr Hematol Oncol. 2010 Mar;27(2):69-89. doi: 10.3109/08880010903360367. Pediatr Hematol Oncol. 2010. PMID: 20201689 Free PMC article. Clinical Trial.
Associated risk factors for silent cerebral infarcts in sickle cell anemia: low baseline hemoglobin, sex, and relative high systolic blood pressure.
DeBaun MR, Sarnaik SA, Rodeghier MJ, Minniti CP, Howard TH, Iyer RV, Inusa B, Telfer PT, Kirby-Allen M, Quinn CT, Bernaudin F, Airewele G, Woods GM, Panepinto JA, Fuh B, Kwiatkowski JK, King AA, Rhodes MM, Thompson AA, Heiny ME, Redding-Lallinger RC, Kirkham FJ, Sabio H, Gonzalez CE, Saccente SL, Kalinyak KA, Strouse JJ, Fixler JM, Gordon MO, Miller JP, Noetzel MJ, Ichord RN, Casella JF. DeBaun MR, et al. Among authors: king aa. Blood. 2012 Apr 19;119(16):3684-90. doi: 10.1182/blood-2011-05-349621. Epub 2011 Nov 17. Blood. 2012. PMID: 22096242 Free PMC article. Clinical Trial.
Clinical trial implementation and recruitment: lessons learned from the early closure of a randomized clinical trial.
Peters-Lawrence MH, Bell MC, Hsu LL, Osunkwo I, Seaman P, Blackwood M, Guillaume E, Bellevue R, Krishnamurti L, Smith WR, Dampier CD, Minniti CP; Sickle Cell Disease Clinical Research Network (SCDCRN). Peters-Lawrence MH, et al. Contemp Clin Trials. 2012 Mar;33(2):291-7. doi: 10.1016/j.cct.2011.11.018. Epub 2011 Dec 2. Contemp Clin Trials. 2012. PMID: 22155024 Free PMC article. Clinical Trial.
Inpatient management of sickle cell pain: a 'snapshot' of current practice.
Miller ST, Kim HY, Weiner D, Wager CG, Gallagher D, Styles L, Dampier CD; Investigators of the Sickle Cell Disease Clinical Research Network (SCDCRN). Miller ST, et al. Am J Hematol. 2012 Mar;87(3):333-6. doi: 10.1002/ajh.22265. Epub 2012 Jan 9. Am J Hematol. 2012. PMID: 22231150 Free PMC article.
Silent cerebral infarction, income, and grade retention among students with sickle cell anemia.
King AA, Rodeghier MJ, Panepinto JA, Strouse JJ, Casella JF, Quinn CT, Dowling MM, Sarnaik SA, Thompson AA, Woods GM, Minniti CP, Redding-Lallinger RC, Kirby-Allen M, Kirkham FJ, McKinstry R, Noetzel MJ, White DA, Kwiatkowski JK, Howard TH, Kalinyak KA, Inusa B, Rhodes MM, Heiny ME, Fuh B, Fixler JM, Gordon MO, DeBaun MR. King AA, et al. Am J Hematol. 2014 Oct;89(10):E188-92. doi: 10.1002/ajh.23805. Epub 2014 Aug 4. Am J Hematol. 2014. PMID: 25042018 Free PMC article. Clinical Trial.
Controlled trial of transfusions for silent cerebral infarcts in sickle cell anemia.
DeBaun MR, Gordon M, McKinstry RC, Noetzel MJ, White DA, Sarnaik SA, Meier ER, Howard TH, Majumdar S, Inusa BP, Telfer PT, Kirby-Allen M, McCavit TL, Kamdem A, Airewele G, Woods GM, Berman B, Panepinto JA, Fuh BR, Kwiatkowski JL, King AA, Fixler JM, Rhodes MM, Thompson AA, Heiny ME, Redding-Lallinger RC, Kirkham FJ, Dixon N, Gonzalez CE, Kalinyak KA, Quinn CT, Strouse JJ, Miller JP, Lehmann H, Kraut MA, Ball WS Jr, Hirtz D, Casella JF. DeBaun MR, et al. Among authors: king aa. N Engl J Med. 2014 Aug 21;371(8):699-710. doi: 10.1056/NEJMoa1401731. N Engl J Med. 2014. PMID: 25140956 Free PMC article. Clinical Trial.
Transition Needs of Adolescents With Sickle Cell Disease.
Abel RA, Cho E, Chadwick-Mansker KR, D'Souza N, Housten AJ, King AA. Abel RA, et al. Among authors: king aa. Am J Occup Ther. 2015 Mar-Apr;69(2):6902350030p1-5. doi: 10.5014/ajot.2015.013730. Am J Occup Ther. 2015. PMID: 26122692 Free PMC article.
Community Health Workers as Support for Sickle Cell Care.
Hsu LL, Green NS, Donnell Ivy E, Neunert CE, Smaldone A, Johnson S, Castillo S, Castillo A, Thompson T, Hampton K, Strouse JJ, Stewart R, Hughes T, Banks S, Smith-Whitley K, King A, Brown M, Ohene-Frempong K, Smith WR, Martin M. Hsu LL, et al. Among authors: king a. Am J Prev Med. 2016 Jul;51(1 Suppl 1):S87-98. doi: 10.1016/j.amepre.2016.01.016. Am J Prev Med. 2016. PMID: 27320471 Free PMC article.
Current Results and Future Research Priorities in Late Effects after Hematopoietic Stem Cell Transplantation for Children with Sickle Cell Disease and Thalassemia: A Consensus Statement from the Second Pediatric Blood and Marrow Transplant Consortium International Conference on Late Effects after Pediatric Hematopoietic Stem Cell Transplantation.
Shenoy S, Angelucci E, Arnold SD, Baker KS, Bhatia M, Bresters D, Dietz AC, De La Fuente J, Duncan C, Gaziev J, King AA, Pulsipher MA, Smith AR, Walters MC. Shenoy S, et al. Among authors: king aa. Biol Blood Marrow Transplant. 2017 Apr;23(4):552-561. doi: 10.1016/j.bbmt.2017.01.009. Epub 2017 Jan 5. Biol Blood Marrow Transplant. 2017. PMID: 28065838 Free article.
Sickle Cell Clinical Research and Intervention Program (SCCRIP): A lifespan cohort study for sickle cell disease progression from the pediatric stage into adulthood.
Hankins JS, Estepp JH, Hodges JR, Villavicencio MA, Robison LL, Weiss MJ, Kang G, Schreiber JE, Porter JS, Kaste SC, Saving KL, Bryant PC, Deyo JE, Nottage KA, King AA, Brandow AM, Lebensburger JD, Adesina O, Chou ST, Zemel BS, Smeltzer MP, Wang WC, Gurney JG. Hankins JS, et al. Among authors: king aa. Pediatr Blood Cancer. 2018 Sep;65(9):e27228. doi: 10.1002/pbc.27228. Epub 2018 May 24. Pediatr Blood Cancer. 2018. PMID: 29797644
The sickle cell disease implementation consortium: Translating evidence-based guidelines into practice for sickle cell disease.
DiMartino LD, Baumann AA, Hsu LL, Kanter J, Gordeuk VR, Glassberg J, Treadwell MJ, Melvin CL, Telfair J, Klesges LM, King A, Wun T, Shah N, Gibson RW, Hankins JS; Sickle Cell Disease Implementation Consortium. DiMartino LD, et al. Among authors: king a. Am J Hematol. 2018 Dec;93(12):E391-E395. doi: 10.1002/ajh.25282. Epub 2018 Oct 17. Am J Hematol. 2018. PMID: 30203558 Free PMC article. No abstract available.
Increasing Educational Attainment in Adolescents with Sickle Cell Disease.
Harris KM, Dadekian JN, Abel RA, Jones B, Housten A, Ddamulira B, Chadwick-Mansker K, King AA. Harris KM, et al. Among authors: king aa. Soc Work Public Health. 2019;34(6):468-482. doi: 10.1080/19371918.2019.1629142. Epub 2019 Jun 30. Soc Work Public Health. 2019. PMID: 31258020 Free PMC article.
End points for sickle cell disease clinical trials: patient-reported outcomes, pain, and the brain.
Farrell AT, Panepinto J, Carroll CP, Darbari DS, Desai AA, King AA, Adams RJ, Barber TD, Brandow AM, DeBaun MR, Donahue MJ, Gupta K, Hankins JS, Kameka M, Kirkham FJ, Luksenburg H, Miller S, Oneal PA, Rees DC, Setse R, Sheehan VA, Strouse J, Stucky CL, Werner EM, Wood JC, Zempsky WT. Farrell AT, et al. Among authors: king aa. Blood Adv. 2019 Dec 10;3(23):3982-4001. doi: 10.1182/bloodadvances.2019000882. Blood Adv. 2019. PMID: 31809538 Free PMC article.
American Society of Hematology 2020 guidelines for sickle cell disease: prevention, diagnosis, and treatment of cerebrovascular disease in children and adults.
DeBaun MR, Jordan LC, King AA, Schatz J, Vichinsky E, Fox CK, McKinstry RC, Telfer P, Kraut MA, Daraz L, Kirkham FJ, Murad MH. DeBaun MR, et al. Among authors: king aa. Blood Adv. 2020 Apr 28;4(8):1554-1588. doi: 10.1182/bloodadvances.2019001142. Blood Adv. 2020. PMID: 32298430 Free PMC article.
Patient-reported outcomes in sickle cell disease and association with clinical and psychosocial factors: Report from the sickle cell disease implementation consortium.
Knisely MR, Pugh N, Kroner B, Masese R, Gordeuk V, King AA, Smith SM, Gurney JG, Adams R, Wun T, Snyder A, Glassberg J, Shah N, Treadwell M; Sickle Cell Disease Implementation Consortium. Knisely MR, et al. Among authors: king aa. Am J Hematol. 2020 Sep;95(9):1066-1074. doi: 10.1002/ajh.25880. Epub 2020 Jun 29. Am J Hematol. 2020. PMID: 32449965 Free PMC article. Clinical Trial.
Publication of data collection forms from NHLBI funded sickle cell disease implementation consortium (SCDIC) registry.
Glassberg JA, Linton EA, Burson K, Hendershot T, Telfair J, Kanter J, Gordeuk VR, King AA, Melvin CL, Shah N, Hankins JS, Epié AY, Richardson LD; Sickle Cell Disease Implementation Consortium. Glassberg JA, et al. Among authors: king aa. Orphanet J Rare Dis. 2020 Jul 7;15(1):178. doi: 10.1186/s13023-020-01457-x. Orphanet J Rare Dis. 2020. PMID: 32635939 Free PMC article.
A Survey-Based Needs Assessment of Barriers to Optimal Sickle Cell Disease Care in the Emergency Department.
Linton EA, Goodin DA, Hankins JS, Kanter J, Preiss L, Simon J, Souffront K, Tanabe P, Gibson R, Hsu LL, King A, Richardsona LD, Glassberg JA; Sickle Cell Disease Implementation Consortium. Linton EA, et al. Among authors: king a. Ann Emerg Med. 2020 Sep;76(3S):S64-S72. doi: 10.1016/j.annemergmed.2020.08.013. Ann Emerg Med. 2020. PMID: 32928465 Free PMC article.
Cognitive performance as a predictor of healthcare transition in sickle cell disease.
Saulsberry-Abate AC, Partanen M, Porter JS, Podila PSB, Hodges JR, King AA, Wang WC, Schreiber JE, Zhao X, Kang G, Jacola LM, Hankins JS. Saulsberry-Abate AC, et al. Among authors: king aa. Br J Haematol. 2021 Mar;192(6):1082-1091. doi: 10.1111/bjh.17351. Epub 2021 Feb 11. Br J Haematol. 2021. PMID: 33570182 Free PMC article. Clinical Trial.
Electronic Health Record-Embedded Individualized Pain Plans for Emergency Department Treatment of Vaso-occlusive Episodes in Adults With Sickle Cell Disease: Protocol for a Preimplementation and Postimplementation Study.
Luo L, King AA, Carroll Y, Baumann AA, Brambilla D, Carpenter CR, Colla J, Gibson RW, Gollan S, Hall G, Klesges L, Kutlar A, Lyon M, Melvin CL, Norell S, Mueller M, Potter MB, Richesson R, Richardson LD, Ryan G, Siewny L, Treadwell M, Zun L, Armstrong-Brown J, Cox L, Tanabe P. Luo L, et al. Among authors: king aa. JMIR Res Protoc. 2021 Apr 16;10(4):e24818. doi: 10.2196/24818. JMIR Res Protoc. 2021. PMID: 33861209 Free PMC article.
Engaging Caregivers and Providers of Children With Sickle Cell Anemia in Shared Decision Making for Hydroxyurea: Protocol for a Multicenter Randomized Controlled Trial.
Hood AM, Strong H, Nwankwo C, Johnson Y, Peugh J, Mara CA, Shook LM, Brinkman WB, Real FJ, Klein MD, Hackworth R, Badawy SM, Thompson AA, Raphael JL, Yates AM, Smith-Whitley K, King AA, Calhoun C, Creary SE, Piccone CM, Hildenbrand AK, Reader SK, Neumayr L, Meier ER, Sobota AE, Rana S, Britto M, Saving KL, Treadwell M, Quinn CT, Ware RE, Crosby LE. Hood AM, et al. Among authors: king aa. JMIR Res Protoc. 2021 May 21;10(5):e27650. doi: 10.2196/27650. JMIR Res Protoc. 2021. PMID: 34018965 Free PMC article.
Sex-based differences in the manifestations and complications of sickle cell disease: Report from the Sickle Cell Disease Implementation Consortium.
Masese RV, Bulgin D, Knisely MR, Preiss L, Stevenson E, Hankins JS, Treadwell MJ, King AA, Gordeuk VR, Kanter J, Gibson R, Glassberg JA, Tanabe P, Shah N; Sickle Cell Disease Implementation Consortium. Masese RV, et al. Among authors: king aa. PLoS One. 2021 Oct 29;16(10):e0258638. doi: 10.1371/journal.pone.0258638. eCollection 2021. PLoS One. 2021. PMID: 34714833 Free PMC article.
Identifying barriers to evidence-based care for sickle cell disease: results from the Sickle Cell Disease Implementation Consortium cross-sectional survey of healthcare providers in the USA.
Smeltzer MP, Howell KE, Treadwell M, Preiss L, King AA, Glassberg JA, Tanabe P, Badawy SM, DiMartino L, Gibson R, Kanter J, Klesges LM, Hankins JS; Sickle Cell Disease Implementation Consortium. Smeltzer MP, et al. Among authors: king aa. BMJ Open. 2021 Nov 17;11(11):e050880. doi: 10.1136/bmjopen-2021-050880. BMJ Open. 2021. PMID: 34789492 Free PMC article.
Neurocognitive functioning in preschool children with sickle cell disease.
Heitzer AM, Cohen DL, Okhomina VI, Trpchevska A, Potter B, Longoria J, Porter JS, Estepp JH, King A, Henley M, Kang G, Hankins JS. Heitzer AM, et al. Among authors: king a. Pediatr Blood Cancer. 2022 Mar;69(3):e29531. doi: 10.1002/pbc.29531. Epub 2021 Dec 31. Pediatr Blood Cancer. 2022. PMID: 34971013 Free PMC article.
Pregnancy outcomes with hydroxyurea use in women with sickle cell disease.
Kroner BL, Hankins JS, Pugh N, Kutlar A, King AA, Shah NR, Kanter J, Glassberg J, Treadwell M, Gordeuk VR; Sickle Cell Disease Implementation Consortium. Kroner BL, et al. Among authors: king aa. Am J Hematol. 2022 May;97(5):603-612. doi: 10.1002/ajh.26495. Epub 2022 Feb 17. Am J Hematol. 2022. PMID: 35142007 Free PMC article.
An evaluation of patient-reported outcomes in sickle cell disease within a conceptual model.
Treadwell MJ, Mushiana S, Badawy SM, Preiss L, King AA, Kroner B, Chen Y, Glassberg J, Gordeuk V, Shah N, Snyder A, Wun T; Sickle Cell Disease Implementation Consortium (SCDIC). Treadwell MJ, et al. Among authors: king aa. Qual Life Res. 2022 Sep;31(9):2681-2694. doi: 10.1007/s11136-022-03132-z. Epub 2022 Apr 21. Qual Life Res. 2022. PMID: 35445915 Free PMC article.
6,012 results